Northern Ireland Beyond Words Project

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What is the project about and who does it help?
What does the project do?
What else does Cruse offer?
How do I get in touch?
Gardening with the generations
Publications and E-bulletins

What is the project about?

In Northern Ireland there are over 15,000 deaths each year, with 82% of these deaths in the over 60 age group. That was why we decided to develop a project specifically for older people.

Beyond Words is a partnership project between Cruse and the Stroke Association. It will provide a range of bereavement services for:

  • People over 60
  • Stroke survivors and their carers
  • Those living in sheltered accommodation 

Watch Linda talking about how the Cruse Beyond Words project has helped her.

Older people 

For older people bereavement may have a special poignancy. It can occur when we feel least able to deal with the life-changing impacts that the death of a lifelong partner, friend, sibling or child can have. A death can trigger the memory of a series of losses experienced over a long lifetime, such as the deaths of parents and friends; and it can come at a time when previously reliable support systems have become weakened or disappeared.

A key aim of Beyond Words is to provide a range of supports to older people.

Stroke survivors

This service is open to all stroke survivors and In Northern Ireland approximately 4000 people have a stroke each year. In 2011/12 there were 32,998 stroke survivors in Northern Ireland with one third living with disabilities. Approximately 10,000 stroke survivors have a communication disability (aphasia), which can add to the confusion and trauma of bereavement.

For example, we often think about the needs of carers and families when a loved one dies as a consequence of a stroke but we tend to have less awareness of the impact of bereavement on the stroke survivor when the person who dies is their carer or loved one. The ability to express feelings of loss is even more difficult when the stroke survivor has lost the ability to speak. To respond to this, a key aim of Beyond Words is to give stroke survivors with aphasia a voice and a means of expression through the provision of bereavement services tailored to their needs.

Sheltered housing residents

There are an estimated 13,000 sheltered housing residents over 60 in Northern Ireland where it has been found that there is a growing need to address the area of bereavement. Beyond Words will work in partnership with sheltered housing providers to introduce support models that meet the needs of residents. It is also estimated that one third of residents are stroke survivors.

What does the project do?

Information and awareness

The project will deliver information sessions throughout Northern Ireland creating awareness of the key issues of bereavement and how to address them, outlining the access routes to services and identifying and signposting individuals to relevant Stroke / Cruse services. Additionally for stroke survivors with aphasia, accessible bereavement packs will be designed produced and widely disseminated.

Training and support

The project will recruit and train volunteers to provide bereavement support for people from sheltered housing backgrounds, stroke survivors and carers and family members. Additionally a home visiting service will be provided for stroke survivors and other people who cannot leave their home environment due to mobility/health issues. Staff and volunteers who are involved in delivering services will be trained in bereavement support and awareness and communication skills.

Independence

The project will have a focus on facilitating its beneficiaries to be able to manage their circumstances. Help and support will be provided by Cruse/Stroke Association as required. Our goal is for older people including stroke survivors and people living in sheltered housing to have better access to bereavement support.

Participation and volunteering opportunities

The project will have an advisory group made up of volunteers over 60 who will advise on the ongoing delivery. There are a range of volunteering opportunities within the project in areas such as membership of the advisory group, bereavement support, communications support, home visiting, fundraising, marketing and administration.If you would be interested in becoming a Beyond Words volunteer or any of the other services, contact us via the contact details below.

Cruse also offers:

  • Someone for adults to talk to. Taking care of yourself is an important part of caring for the children you're concerned about. Cruse offers the opportunity to talk in confidence about your own needs with a trained bereavement volunteer.
  • Awareness raising events for professionals, communites, carers and professionals working with bereaved people and their families. For more information contact Paul at the email address or phone number below.
  • Advice, support and informational literature for professionals, communites, carers and professionals working with bereaved people and their families: please see below for our contact details.
  • Advice, support and informational literature for parents and carers: please see below for our contact details. 

Contact details

Beyond Words Manager: Eleanor Ellerslie eleanor.ellerslie@cruse.org.uk. Tel 028 9079 2419 

Beyond Words Co-ordinator: Rachel Haugh Rachel.Haugh@stroke.org.uk

Publications and E-bulletins

Accessible Bereavement Resource Pack

Report on Living Beyond Loss Event

February 2016
November 2015
July 2015
April 2015
January 2015
October 2014
July 2014
April 2014
October 2013
July 2013
March 2013